1st European Biobank of samples from patients with RDD
 
Our team is dedicated to the scientific development of cutting-edge in vitro diagnostic (IVD) tools and solutions that combine genetics, epigenetics, and AI to address adolescent idiopathic scoliosis and improve the lives of millions of people around the world every day.
Collaboration among research scientists, physicians, industry, and patients is essential for the advancement of treatments for human diseases, as each of these stakeholders contributes a unique and valuable perspective. Scientists research and develop new theories and technologies, Physicians apply that knowledge in clinical practice and provide insights into the real needs of patients. Industry, in turn, plays a crucial role in producing and delivering the achieved advances to the end user, ensuring they are accessible and effective. Finally, patients are at the center of this entire process; the samples collected from their tissues—be it saliva, blood, or other cells—along with their experiences and feedback, are essential for guiding research and the development of breakthroughs that truly improve their quality of life. Together, they form an interconnected ecosystem that drives innovation and improves health outcomes.
Last year, we took part in an initiative to create the first collection of samples from patients with RDD in the CIBERER Biobank, CBK.
This is the only biobank of this type of samples in Europe, and it could represent an international milestone to improve clinical decision-making for people affected by RDD, which affects nearly 10 million young people worldwide.

“The creation of the EIA sample biobank is a very important milestone in the research of this condition.”

For several decades now, genetic and epigenetic theories related to the development of idiopathic scoliosis have gained traction, and this type of initiative brings us closer to a clearer future, where clinicians can make better decisions.

From the Association, we express our commitment to research and thank EpiDisease and the Ciberer Biobank for their role, hoping this will be the beginning of new research lines to improve the quality of life of patients with idiopathic scoliosis.”

Amelia Muñoz, presidenta ADECYL.

“The importance of the biobank lies in allowing researchers to access a cohort of well-characterized patient samples on which to conduct various biomedical studies or respond to any technological advancement that enables progress in understanding a specific pathology.”

Carmen Aguado, coordinadora del CBK

Does your center want to participate in the voluntary collection and donation of saliva samples from patients with adolescent idiopathic scoliosis (AIS)?